Greetings everyone!

Mom and Dad wanted me to update everyone on their most recent visit to UCLA this past week.

This week's visit to UCLA was primarily a check in; with the typical blood work and trial med checks. Mom also had an Echo-Cardio Gram. This procedure was protocol for the clinical trial. The purpose was to verify that there are no negative heart-related side effects from the medication. All results showed that there has not been any change to Mom's heart since starting the clinical trial. All is good.

The next scheduled MRI is August 15th. This next MRI will mark 8 months from Mom's second surgery, last December. Please pray for continued reports of no new growth. Please also pray for continued healing of Mom's vision. Her peripheral vision remains lost and though she is undergoing therapy to help, the daily struggle with her vision is challenging.

For those of you not on Facebook, that check in here on the blog to get updates on Mom and Dad, we wanted to let you know that our Silent Auction Fundraiser Event was very, very successful! We were overwhelmed at the outpouring of support we received in the form of auction items, monetary donations, and the turn out of friends and family! We as a family can't thank you enough for all that you did to help us make this a successful night. Also, to those of you that came out to Pollos Maria on Monday night!

Stay tuned for more updates and news from our family, and our journey to beat this beast called Brain Cancer.

As always- Love and Gratitude,

Lizzy for the entire Roberson Family

Silent Auction Event- June 28th

Many of you are aware of the event that we are holding to support Sue and Roger (Mom and Dad). But just in case, this is news to you... Read on! 

We are holding a Happy Hour and Silent Auction where all proceeds will go directly to the Susan M. Roberson Trust. We are so grateful to have received donations from many of you, and will continue to accept donations. We are hoping to have all auction items in our possession by Saturday June 21st. (the weekend before the event) 

As the event is coming closer we want to ensure that all of you have the information so that you can plan to attend! The only way we can ensure a successful night, is by having all of our family and friends there! So, check out our flyer below, and make sure we see you on the 28th at 5pm!  We will continue to post updates on the event here and on our facebook page www.facebook.com/supportmamasue so stay tuned! 

Even more importantly... please continue to pray for complete healing... Mom's next MRI is next Friday, June 20. We want this scan to show that the current treatment is maintaining and that there are no new signs of growth. Thanks for your prayers.

Far Away Hood- Barn Sale Fundraiser

Tomorrow and Saturday, May 23 & 24, our amazing friends at www.farawayhood.com are having a Barn Sale in Fallbrook! 25% of their earnings from this weekend will go straight to the Susan M. Roberson Trust!

The address for the sale is 4075 Burma Spur Fallbrook 92028.

We are so grateful for their generosity, and hope to see you all at the sale! I will be there to work/help out/SHOP on Saturday, so come see me!

Check out their site to see some of the amazing vintage and up-cycled items they will be offering! These ladies are seriously soo talented- Don't miss out!

MRI update 4/25/14

I am thrilled to announce that today was ANOTHER GOOD SCAN! 

Results of the MRI today showed that everything is stable and maintaining! No new tumor growth and all blood tests are normal. The trial meds will continue as planned. Results from today were quite a relief to us all. We tend to get anxious in the week leading up to an MRI, but God is good and reminds us that we need to fear not- he is in control! Thank you all for your continued prayers. Please give thanks, and continue to lift mom up in prayer. As always, Sue is grateful for your love and support. 

Take this great news into your weekend, and enjoy time with family and friends; as we will too! 

Love and Gratitude,

Lizzy (For Mama Sue and the whole Roberson Family)

PS- a few great pics of Mama Sue from last weekend. 

Mom and me on Easter 

Nonnie and Reid making beautiful Easter Eggs

Sophia & Chloe Jewelry Fundraiser

We are so excited to be sharing this news with you! Sophia & Chloe are offering 40% of their online jewelry sales straight to the Susan M. Roberson Trust. This generous offer comes when you purchase any of their beautiful jewelry and enter the offer code MAMASUE at checkout. 

Treat yourself or a woman in your life to a beautiful piece of jewelry, all while supporting Mama Sue! Thank you for taking a moment to browse through their collection to find the perfect piece for you. 

Visit  www.sophiaandchloe.com and enter MAMASUE and checkout

Ongoing Update

It’s been a while since our last dose of good news, so we wanted to give you an update on the most recent happenings in our world. (Also- I wrote this about a week ago, and am just getting around to publishing... sorry for the delay)

Last Friday (two weeks ago really) was a “UCLA Day”, as we call them; a day of early rising and hitting the road to get up there for a day full of poking and prodding. On UCLA Days when there is not an MRI, the drill is usually pretty standard: blood work, followed by a check-in at the research center, a quick lunch, and hopefully back on the road before traffic gets too horrendous. Friday’s check-in was positive and uneventful. (PS- we like uneventful) Blood work came back fine and the study meds will continue as directed.

Recently, mom started seeing a new eye doctor, to get a second opinion and some occupational therapy for her loss of vision. The loss of peripheral vision on her left side remains to be the biggest struggle and hindrance of her day-to-day progress. Imagine not seeing someone who walks up next to you, or passes you something at the table, or just being unsure of your surroundings because you’re only ever seeing just half. Obviously, this is a problem that could be much worse and if this is the challenge that she has to live with, we will deal; however, it most definitely makes things difficult and most of all frustrating. She now has a new contact prescription and new glasses. :)

Her new Dr. seems to believe that with time and specific therapies, the pathways in the brain that carry the optic nerves and fibers that control vision can be restored, at least somewhat. This was music to our ears and we are hopeful! So for now that means, weekly visits to a “spinning table and flashing lights” and daily eye exercises. (I apologize for the crude explanation, but that’s the most basic description) Like most people going through any type of physical therapy, Mom doesn’t exactly enjoy these therapies. But agrees that if it will help her current vision, it will be worth it. 

As always, we as a family, on behalf of Sue, ask that you continue to think positive thoughts, and send up prayers for strength and complete healing. Through all this we know one thing for sure- God is in charge and He is good. Dr.’s are great, and we’re thankful for those we’ve been blessed with, but HE is the true healer. So please, ask for his favor in her health, and give thanks for all that we’ve been given along the way. Wednesday of this week (last week) was exactly one year from Mom’s first surgery…a milestone that many with her diagnosis sadly do not get to see… we have so much to be thankful for.

As her daughter, I ask something too- if you find time in your coming week to find some way to send some words of encouragement to her, be it through the internet, in a card, text, or voicemail, know that it will be graciously received. When we talk about the people that this blog and the Facebook page reaches, it brings tears to her eyes every single time. You are so important to her; please let her know you feel the same way. Every bit of encouragement and positivity is stronger than any dose of trial medication. :)

On that note- the same goes for Roger/Dad. Those of you that know this dynamic duo know that they are a true team, and what one feels, the other does as well. He could use your encouragement. He is, as always, everyone’s rock.

Thanks for reading. Sue's next MRI is scheduled for Friday April 25th. I will post results here. 

How to Give and Support

Many of you have asked about or already contributed to a trust that has been established to assist with medical bills, with the help of Tracy Carmichael (our official Guardian Angel). The information for how to donate is below. The generosity of those who have already contributed is truly incredible; and we thank you so much. 

The trust is the Susan M. Roberson Trust 2013 and checks can be made out directly to it, and sent to 

                               Tracy Carmichael

                               4566 Horizon Dr.

                               Carlsbad, CA 92008

If you have any questions regarding the trust, please email Tracy @ whatzuptlc@yahoo.com

Thank you for reading and caring about Sue. Please continue to PRAY FOR COMPLETE HEALING! We will post updates here.